5. How to use Energy Healing to Get Well

Emily Wallace

Energy Healing

Have you wondered just what energy healing is? All of this “woo-woo” stuff gaining traction in 2017? (Especially here in Los Angeles.) Learn about shamanism, reiki, and other weird but magical things in this episode from two unlikely women.

Emily Wallace

“Once I committed to my emotional, mental, spiritual health that’s when I started to thrive” -Emily Wallace

Emily is a NYC based Intuitive Energy Healing Practitioner and Shamanic Reiki Master Teacher. After many years of battling chronic Lyme disease—visiting the hospital, bound to bed, not working, cared for at home by her parents—Emily found her way to 75% through antibiotics and various herbs and supplements. Desperate to do more than merely survive, Emily found energy healing. She was an unlikely client, poking fun at the whole thing. But, to her surprise, it worked. After surrendering to this modality she truly healed and stopped hearing from her symptoms. Today, Emily is thriving at 100% and, after getting certified at the Omega Institute, she has turned her good fortune into a passion for helping others using her own energy work. She is the founder of www.lightheartedhealingnyc.com

To book appointments with Emily, please see above link or visit her on social media @lightheartedhealingnyc

Listen to this episode if you are especially interested in:

  • Lyme disease
  • Herxing
  • How healing the emotional, physical, and spiritual helps us heal the physical
  • Holistic healing—using Western and Eastern modalities
  • What Shaminism is
  • What Reiki is
  • What Energy Healing is
  • Why it’s important to track your symptoms
  • How to love your Lyme away
  • Awesome self-care tricks
  • Love languages
  • More on how I quit coffee

Resources mentioned in episode:

Happy listening!

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I am Lonely; I am Loved

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Throughout illness, I could not simply or efficiently answer the question I was so often presented with: “how are you?” I’m sure the answer seemed like an obvious, “not good.” To  the outside eye— I was undeniably amidst a shipwreck. I was skinny and pale and frail and depressed and being told there was probably no way out.  But “not good” didn’t resonate—it wasn’t true. The experience of being sick  felt (feels/felt/feels) dynamic.  I was learning indispensable lessons. I was developing as a human, deepening as a spirit and as a creative. I was gaining a wealth of knowledge and a sea of love and compassion. How could I be miserable about such a beautiful makeover?  I was very hopeful—always, almost painfully hopeful. I once read that “hope is the opiate for the truly hopeless.” I wondered if that was me. I still wonder if that is me. Maybe it is, but it feels more true to say that it has been light and dark all at once. All of my life, maybe—I have felt the lightness in equal proportion to the darkness. Amongst these monumental inconsistencies was the desperate loneliness I felt while absorbing more love than I even knew existed. A love not only from my fellows but also from myself. But what brings me to this post is not necessarily the reflection of the past (although, I am very much reflecting) but the feeling I have presently: Why after getting so much healthier do I still sometimes feel so completely heartbreakingly alone?

(more…)

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How I Went From Healer-Phobic to Healer-Friendly

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“I’m so horny! It’s killing me,” I whined, steeped in sexual frustration, in the backseat of a Toyota on Sunday afternoon. Three of us were squeezed in the back seat—two of my closest friends and me— and they had been listening to me have random sexual outbursts all day.  Ian is on his lengthy- as- fuck dream trip, and I feel a little…insane without him. “I barely even masturbate,” I yammered on, “it bores me these days, just makes me more sad.” My friend is a talented energy healer, and we’ve worked really well together in the past so she said, “OOOO, I wonder if I could try some sort of energy work on you where I could get you to an orgasm without even touching you. I’ve never done it, but it’s so fun to work with you because you’re so open.” Me, so open? I thought. “Hah. remember when I was NOT open to any of this nonsense,” I retorted, “And, YES, let’s absolutely do that!” I feel baffled when “healers” of any kind suggest that it’s so wonderful to work with me because I’m so open and available. That was so not me. Pre-illness I had the “luxury” of being  healer-phobic, the “luxury” of judging people, the “luxury” of being closed-mided,  the “luxury” holding onto resentment and anger, and the “luxury” of eating a nightly waffle sundae.”  We piled out of the car to stop in at an organic, over-priced, crystal-decorated Malibu eatery. It was the kind of place that attracts all of the wealthy white people on green-juice fasts who are willing to pay $15.00 for a tube of coconut oil and $175.00 for a beach towel. Did I think it was ridiculous? Yes. Did I love it there? ABSOLUTELY. The wall of supplements made me feel candy-shop-dazzled, the all natural body butter was enticing, and, oh my god, they served vegan, gluten-free and SOY-FREE grilled cheese. Heaven. All I needed was Ian near me, and I would have had an orgasm right then. Yes, all-natural sunscreen and kale wraps turn me up and on. No shame here:  I’m an oil-pulling, green-juicing, meditating, all natural healing… weirdo. It gets worse: Over our new-age grilled cheeses,  we talked astrology. I know very little about astrology, but I love when people talk about it. Let me rephrase: I love when astrology-interested folk want to talk specifically about me and my sign. We were looking at my chart, and our astrology-savvy friend took note that one of my moons was in one of my  houses (blah blah blah) , therefore, I’m a “wounded healer.” My eyes got all big, “wounded, healer,” I squealed, “Oh my god! My distance healer just told me that one of my archetypes is a wounded healer! How cool!”

How cool? What in the ever-loving fuck is this life? 

I grew up eating raisinets for a healthy snack and drinking coca-cola with  meatloaf dinner.  I  suffered from panic attacks and lots of random infections all treated with…you guesssed it…antibiotics. I breathed in smoke and mold all day, was harassed by my father, tried to take care of my mother, and lived in a fantasy land most days because it was safer than reality. By highschool, I  had bronchial infections every couple of months, and I lived on cheez-it’s, salami, funyons, the hangover BLT, and hazelnut iced coffee with tons of half and half. I self-medicated my anxiety with drinking, smoking in excess, and instigating unruly sexual situations that numbed the pain of my missing father. Self-loathing began intruding on every waking moment of my day activating my first major step toward a healthier living.

I cleaned up my act and stopped drinking. I bought a sports bra, got a membership at the 92nd street Y, started drinking some water, and ate some cottage cheese between my late-night waffle sundae binges. I thought I was the healthiest. Only the healthiest people eat cottage cheese and own sports bras.  Then my panic attacks resurfaced with a vengeance. When I was one meltdown away from becoming agoraphobic, I started taking anti-anxiety meds. I thought I oughta also dabble in meditation since I didn’t want to be on meds forever so I attempted a ten-day silent meditation retreat. I made it three days and claimed, as I left,  that I just wasn’t meant to be quiet.  I nearly lost my mind sitting with myself in the darkness and silence—there were too many  painful memories, there was not enough coffee, and no space to exercise. No, thank you.

Those three days validated my experience with holistic approaches to healing—they weren’t for me. I was madly-pro western medicine: Bring on the quick-fixes, the distractions, and the antibiotics! When it was convenient or it was necessary, I was down to be spiritual, but it was always short-lived. I never wanted to be TOO spiritual. A little bit of toxicity felt sort of YUM to me; I brought the FUN to dysfunctional. And I loved me some fatty beef.

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Something about being a sweet, peaceful vegan seemed so stale and virginal to me.If I could stay just a little edgy, a little hardened, I’d be more interesting, I thought. I wanted to be only half in touch with myself, only somewhat open-minded, and the adrenal burn-out version of healthy which looks like too much excercise and distraction while chowing on some kale every once in a while. The mention of eastern and holistic approaches to medicine and healing made me tighten. It was like people were talking about crossing an ocean in a row-boat—haven’t we got better things to do and my god, that sounds like unnecessary labor, hello, there are cruise ships these days! But, Jackie, cruise ships are bad for the environment, you said. “Well, I’d rather ignore that so I can get where I’m going faster, thank you.” It was true, I sort of (gasp) didn’t care about the environment, the toxins in the air, in my food, or in my water bottle. Not to mention my distaste for chakras, angel cards and acupuncture. What a snooze fest! I had already given up booze, drugs and cigarettes, did I really need to go full-on new-agey grandma? My judgments were just a way of covering up my extreme discomfort around “super spiritual.” I wasn’t ready to be seen. I was full of untouched trauma, stuffed to the brim. I felt like “Healers” had some sort of special powers. . .like they were the only people in the world who could see my thick and vast unbecoming wounds. Healers made me feel like my mask was being forcefully ripped off of my face, like all of the grime, sadness, jealousy, and petty resentment that I was hiding from the world— was suddenly visible. So, when I came into contact with one, I either got the hell out of there, or I put a thick wall up—pretending to have no feelings.  I had spent a couple of decades trying to keep my toxicity IN and under control, undetected.

My best efforts to control my humanness got me Lyme disease. And my best efforts to get well from Lyme disease—which included tons of antibiotics and distraction—got me much much sicker. The cruise ship I was on capsized after ten long months of doing it “the fast way”of western medicine.  I was left with that damn rowboat.  And, if I was going to survive, I was gonna have to get in and start rowing—slow and steady —with a shit load of patience. I was afraid of sitting with myself, slowing down, going soft, needing help, being seen, vulnerable and human. But my options were to go “there”—into the darkness of my soul/my truth with love as my main form of protection— and heal from Lyme, or to avoid “there” and probably stay sick. I surrendered completely. I was willing to be seen and to go into the pain so that it could lose it’s power over me became my focus.

I did everything anyone suggested from Ozone therapy, supplements, herbs, and body work. I changed my diet, I took the herbs, I meditated more, acupuncture became a weekly practice accompanied by chinese herbs, and I worked hard on self-love. And then—my biggest challenge— making friends with healers. Opening my mind so much that I could actually believe, for just a second, in something as silly as astrology. GASP.  But it helped! And then, reiki. And that helped. And then water blessings and neuro- feedback, group meditations, yoga, prayer, chakras, crystals, and getting hugged by Amma.   My  body sucked up this new way of life, like I was a plant that hadn’t been watered in a decade. I became a person that craved group meditations, green juices, acupuncture and reiki. Love gave me sunshine and alternative-medicine (in whatever form) gave me water, and some time later, I started to fucking bloom.

Becoming open to any possible form of healing has made me free— my life has become boundless with so many options. Yeah, I’ll talk about the power of crystals with an open mind, yeah I’ll talk about intuitions, heart, and powerful candles. I’ll also talk about all of the western approaches to healing that work—western medicine works when used correctly. I don’t give a shit what we are talking about as long as it’s something that helped someone else get closer to wellness realized. I light candles and I turn on an essential oil diffuser, and I sit on a yoga block while I practice breathing into my belly—INTO MY FIRST CHAKRA. I believe in magic because why not? In my experience and from what I’ve seen, you have to believe a little bit in magic and pixie dust if you want to beat Lyme disease. Beating Lyme disease isn’t even my priority anymore—thriving is my priority, and I won’t let any of my judgments, my resentment or my fear of being seen fully as a human get in the way of my best life. Healing from the inside-out is healing that lasts. I don’t know about you, but I intend to thrive for many many many many years to come.

With fun and love and weird ju ju,

Jackie

PS: Please use your discretion when choosing people to work with! OK? My “team”  came highly recommended to me by people I trust.

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Finding your G-Spot: On Gratitude

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I was sitting  in a circle of spiritual strangers on a meditation pillow,  my knees resting heavily on the pillow’s surface, my sit bones heavy on my heels, and my head heavily hung— crying. The air was humid—the air was always humid  in Bali. We had just been led through a magical service conducted by the radiant and tender High Priestess of Bang Li— an experience that thawed me out, leaving me in tears. A vibrant woman approached me softly, “I feel moved to speak to you,” she said, “are you sick?” God, it hurt me so bad to know that I didn’t look well, that people could see it,  “I’m getting better but, yes, I have Lyme disease. I’m in Bali doing Ozone therapy,” I said.  She held my hands,  “I had MS, I was about to end up in a wheelchair—in fact I had ordered the wheelchair— and now my lesions are reversing because, in a weird way, I started vibrating above the illness.  You will get well, I can tell.” I cried harder…because I was sad, because I was exhausted, because I hadn’t slept in maybe 2 weeks, because I felt loved in that moment.  We talked for a good while—she was Greek,  a graduate of MIT, and on her way to study mysticism in Thailand and she found her extraordinary story hilarious. She laughed and laughed. I cried. “You just need a few things to heal,” she said,  “one, you need to laugh.” I stopped her, ” I never laugh anymore. My sense of humor is gone.” It was true. I had been suffocating in my own sadness AND lack of sleep for so long. Her lightness was contagious though, and  I softened enough to release an honest smile and chuckle. I felt free in her presence.  She continued, “you need to vibrate above the illness. Do what brings you joy. I think you belong on stage—dancing or acting.” I lit up, my energy coming more forward thinking about the things I loved.  “And, third,” she said, “you need gratitude.” I jumped in, “OH I have that!” She said, “I can tell, you’re actually full of gratitude.” I was so relieved. I was doing something right all of that time. I was/am grateful and she could see it. I wear gratitude like I wear my other glaring personality traits—loud and proud. She hugged me goodbye that night, promising I’d get well, and we never spoke again, but she gave me an incredible gift in that brief exchange. That was the night I welcomed my sense of humor back after an absurdly long intermission, I reinstated myself to the performing arts, AND that was the moment that I realized that my gratitude practice (nine years deep) was having a profound effect on my life. In more exciting words, I’ve done the work, I know where my G-Spot is and—ahem—I  can orgasm whenever I choose.

Now that I AM on the way to a full recovery, I’m here to back her up—an “attitude of gratitude” is indispensable during illness (or at any other time—let’s be real).  It can be the light IN the tunnel—not at the end of it. And if joy and happiness are scientifically proven to support our immune system then making a list of things we are grateful for (which is a verified way to increase joy and satisfaction) seems like a really obvious place to start, right? But how to gratitude!? How does this practice just become part of your life instead of that nagging thing that you HAVE TO DO every night?  And, how can you ALWAYS be grateful no matter what horrifying thing is happening in your life? Like  chronic illness, depression, loneliness, death, divorce, and so on. Gratitude got me out of bed and happy to participate in my life countless times, and how did I get there? Like so many of my stories, it all started  with my personalized cocktail of cocaine and daddy issues. 

My father was in rehab again.  He had been sent once  before under the same Wall Street conditions, “get sober and you can keep your six-figure income and your executive position. Don’t get sober and keep up this behavior— we will have no choice but to fire you.” Eight years earlier that threat worked, but this time, he was frighteningly unaffected by the potential risk. He was wildly against getting sober—putting him in rehab was like caging a lion, he was just waiting to get out and go on a killing frenzy.And I, apparently, wasn’t one to judge.  On February 14th, 2004, while my dad sat on his hands in rehab fighting his cocaine addiction, I ripped my first line off of a mirror in a bedroom on the Upper East Side of Manhattan. And I got so high—so staggeringly high. Later that night/early that morning,  back at home, I was experiencing my first miserable come-down while my brother stumbled around freshly wasted. We did what 2 high siblings affected by alcoholism do—we fought an incoherent, mindless fight. He wanted to visit our father in rehab, and I was not invited. In fact, I was forbidden, he said. I squealed in his face, pissed off,  provoking him to throw cautionary punches at me, purposefully grazing past the tip of my nose— just to let me know how mad he was and close he was to losing it. I eventually stormed off to bed. Defeated and exhausted, I fell asleep as the sun came up.

When it turned out that my dad didn’t want visitors, we were given the option to write him a letter. I wrote him a fucking letter, alright— my anger toward the old man had become unhinged. The problem with my “unhinged” letter was that it lacked ANY strategy. If my plan was to shame him into getting sober (which I believed it was), I was failing miserably.  My real motive—that of a 16-year-old girl desperate for her dad’s attention— went undisguised:

“I’m a party girl. I just ripped my first line of coke the other night. I party hard.I’m no goodie                -two- shoes. I drink and smoke and take pills—I measure up to all of the guys, but I don’t get carried away. Not like you. So this isn’t coming from some pussy place. I know what it is to love drugs, and I know     what it looks like when someone needs to stop. You need to stop. I love you.  Jackie”

Ah, the Hallmark greeting card from one dysfunctional family member to another.

He never wrote me back, but in his first few turbulent days back from rehab, he asked to speak to me alone. I was on edge and excited—I hadn’t been alone with him in so long, and I was hoping for some deep connection, a new spark, love reignited. We went into his office, I took my seat at his cherry oak desk and he strutted to the power seat— behind the desk. His office was dark, heavy, and cluttered.  We  lit our respective Marlboro lights. He took a deep drag and as the smoke filled his lungs, he got his thoughts in order. He leaned back, exhaled, smoke filling the room, and said,  “Let me just read your letter aloud…” After he read it in full, he took another drag, put his cigarette out and leaned forward— his elbows on the desk and his piercing narcissistic eyes challenging me.  Yikes. Embarrassing—I could even see that I sounded loco. But I kept my cool, “yeah, well, it’s true. I do drugs, and, as it turns out, I like cocaine.” He grilled me. We must have talked for an hour about my specific experiences with sex and drugs before he challenged me to not drink, smoke or use for two weeks. “Two weeks. that’s all,”  he said. Anxiety coursed through my body. He took note, “you look scared because you’re thinking about the two weeks, but you can do it just one day at a time,” he said.”OK. but how in the fuck will I not use ‘one day at a time’  for TWO WEEKS?” And that’s when he laid out some other tools like journaling, the serenity prayer, and gratitude lists.

When he said “every night, you write down 10 things you’re grateful for,” my immediate response was, “but what if I have nothing to be grateful for?” Sound familiar? Have you scoffed in a similar way the last time someone suggested you write a gratitude list? My dad, totally fucked up in so many ways, came through with a life-long lesson in that moment: “You have nothing to be grateful for? You have ten fingers and ten toes. There, that’s 20 things.” I giggled, a bit ashamed that I had missed something so equally simple AND significant.  He went on, “you have all of your limbs, your senses, you can walk, you have shelter, a bed, and food.” Oh shit— It was jarring that I hadn’t thought of those things myself, but I’m forever grateful for that lesson— even though I didn’t take the suggestion for another couple of years.

Neither of us made it through the two weeks without using.  Instead, we took one last family vacation to the bowels of Hell. Apparently, Satan found the taste of me  unsuitable for his palate. Too feisty or too sweet,  he couldn’t fully digest me so he spat me out. Once I was upchucked from that vile journey, I had a lot of grime to clean off. And so at 18, I started wiping away the debris with spirituality. When a wise woman on the spiritual path suggested that I start writing gratitude lists due to my blinding self-pity,  the lessons my father taught me in his office two years earlier came rushing back.  I picked up a pen and started writing: ten fingers, ten toes, my limbs, and my senses. It was an unbearably painful time— so I kept writing and my lists grew;  I’m grateful for my limbs, my senses, shelter, food, a job, clothes, and my friends. And they kept growing.

In 2009, when my twenties were as fresh as a juicy peach, my treasured friend asked me if I wanted to participate in a gratitude email chain where we would each write our daily lists and “reply all.” “Sure,” I said, not thinking much of it, unconsciously assuming it would fizzle within a few months because most things like that do. How fun it is to be proven wrong sometimes. That email chain has changed my life. There are 11 of us on the exchange, all women,  and we have been writing for —please wait as I access the left side of my brain—seven years! We started as friends in NYC and, in seven years time, we have adventured with one another through big moves, marriage, children, death, divorce, break -ups, new relationships, new jobs  and, in my case, illness—all through gratitude listsWe have had delicious “gratitude brunches,” attended each other’s weddings, been on the other side of the screen when the first  “Introducing: insert new baby picture” got sent, been cheerleaders for each other’s dreams, and every one of those girls donated to my fundraiser. I’m so grateful for them. But because of all of that practice, I never have to do much digging to find my gratitudes, and, as a result, I’m often (not always) one of those “glass half-full” people: often optimistic with moments of pure elation. Let me be super clear as you may now be rolling your eyes at my perkiness. I am madly-pro taking days off from “positive thinking.” This is no time to go beating yourself up for not being “grateful enough.” If you need to lie in bed and steep in self-pity every once in a while, I support that, and I believe it’s also crucial to healing (in small doses). I never suggest you “gratitude list” your way out of feelings, out of humanity, but that you gratitude list yourself into a more balanced view of reality. 

You’re feel -good- G can be equally as accessible (if it isn’t already). Here are some tips:

Make your own email chain! All you need is one other person and access to your own discipline and consistency. It can take as little as 30 seconds to shoot off a gratitude list and  connect with a friend. Most of you know that I’m all about FUN (and love) so give yourself a laugh and a creative outlet as you write your lists. The subject line is where all of the genius is in our group:  We have seven years worth of quirky subject lines:  “G’zzzzzz ma Ladiezzzzzz,” “Gratitat,” “Nothing left to do but gratitude,” “Forever G,” “In Flight Gratitude announcement!” “Saturday Graterday””Guys WHOA I need gratitude,” “Spring Ahead into Sunny Gratitude,” “She’s All Grat.” “Even in Frosty California, Gratitude Survives,” “We so G and so Free,” “Grateful Feet have Got A lot of Rhythm.”  Do you catch my drift? I know, we are *the coolest.*

If your stomach is turning at the idea of being on a gratitude email chain with corny subject lines then simply start writing lists. Write them on your phone as you sit in waiting rooms ( or half-naked on the exam table), pause your stinking thinking and say things out loud when you’re stuck in traffic, write things down in your journal, and on the days when things are just so bad and you’re desperate, text a friend and say, “wanna do the gratitude ABC’s?” All day long, you can go back and forth with that trusted friend stating what you’re grateful for. They say “I’m grateful for my hot Ass,” and you say, “I’m grateful for my Bone Broth.” And they say, “My Cat,” and you say, “My Dog —AND ew you have a cat?” This is so efficient as you’ll be mastering multiple “healing activities” at once: gratitude, laughter, AND companionship. But if you’re still rolling your eyes and you’re a driven person that just needs a challenge then I challenge you to find one thing a day and write it down for the next 365 days.Try and make it as specific to the day as possible.I promise you that if you practice gratitude consistently for just a little while, you, too, will find your G-Spot. You, too, will have gratitude orgasms.

Get writing!

With fun and love,

Jackie

 

 

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Lyme Disease Stripped me Down to Human.

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I felt like I was hitting my stride toward the end of 2013—25 years old, single, sexy, and with a whole world of options in front of me. It seemed like I had absolutely everything I needed to succeed in life. Most importantly, I was young, healthy and pretty. Yes, I had those bonus things like being talented, smart, and ballsy. Blah blah blah. But first and foremost, I was young, healthy and pretty. And living in Los Angeles— just to be cliché. I sat outside of a coffee shop in Franklin Village, LA, drinking coffee with my friend Nick. Franklin and Bronson is a very “Hollywood” corner,  densely populated by improv actors and screenwriters having coffee-shop-meetings about their upcoming “projects.” Nick and I sat rolling our eyes at every opportunity but also. . . entirely fitting in with the crowd.

Clad in a black dress decorated with a gold zipper  running snug down the center , accentuating  my small waist line and coming to an abrupt stop just a couple of inches below my crotch,  drawing attention to my legs which looked extra long thanks to my five- inch- high, colorful, hippie-swag platforms, I giddily listened to Nick’s compliments, “god damn you look hot. My lord. You need to walk around like that all of the time, you’ll get an agent in a second.” I smirked—knowing exactly what kind of sparkle my blue eyes made when I smirked because I had spent way too much time smirking at myself in the mirror. . .for practice, I guess.  I thought I had already swallowed my daily prescription of validation when I noticed a man at the next table looking at me intently. He was smoking, had overly manicured black hair and hopped- up energy. His energy is what exposed him as a James Dean wannabe rather than a James Dean look a like. I had no interest in him romantically, but I was curious to find out what words were sitting on the edges of his eyes, the cliffs of his tongue.  On our way out, as I sauntered past his table, he stopped me. Through a manic lisp, he spoke with a sense of urgency—anxious to get something out of life, to go somewhere he wasn’t, passionate or painfully discontent, I wasn’t sure— he asked if he could photograph me. I could barely get a word in, he lit another cigarette, complimenting me up and down on how “interesting” I was, how perfectly “symmetrical like Charlize Theron,” how “hot my body” was my “legs,” my “hair.” He was sure (something that is amateurish in this town—all the pros know that there’s no such thing as a “done deal” until you get to set or get your check) that if he photographed me *free of charge* he could hook me up with the best agent in town. After he took out his iPad and showcased his truly spectacular fashion and portrait photography, I agreed to take his card and contact him. He complimented me five more times before we finally walked away, and when we were just out of ear shot, Nick laughed, “literally all you need to do is go outside and opportunities meet you. HA! You lucky bitch.” An opportunity met me, alright. That one exchange changed my life forever. That one exchange, that one meeting  was the beginning of my strip poker game with life—the game that stripped me of pretty (and almost everything else I identified myself with) and left me profoundly HUMAN.

Nick was right, it had been a fact—my looks got me stuff. Sure, being an “attractive female” comes with its own set of dilemmas: I’ve had a serious stalker, I’ve been talked AT in demoralizing ways, middle-aged men did shady things to me when I was much too fucking young, my father carried around my headshot telling people I was his wife (YUP), and I often felt like my only  noticed asset was that I was fuckable—like that was my only earned girl-scout badge, if you will. I’m not sure if being “attractive” was the motivator of such treatment or if “female” did the trick on its own. A combination of the two plus the undeniable fact that when I entered a room,my palpable sexual energy preceded me(something we can just blame, if you don’t mind, on the fact that I was born a Scorpio) was sometimes heavily troublesome. But, I’m somewhat ashamed to say, it was never something that really bothered me. We are all so often judged on our physical appearance and if my appearance was one that sparked endless attention, free stuff, and “any guy I wanted to have,” it didn’t seem like something to complain about. For me, being a pretty girl won me my father’s affection, got me through grade school and junior high mildly tormented but NOT completely abused. Being pretty earned me a seat at the “cool kids’ table” like two or three times; “pretty” became synonymous with “enough,” and that’s when being pretty got me into real trouble. When it was the prime definitive quality about me. That “pretty” was something that I relied on— that I needed as my sort of fall-back plan on a daily basis—THAT was a problem. And, I’m blessed/cursed with self-awareness so I knew it was a problem, and I knew that, at some point, I was going to have to learn another way. I was waiting for the day that I would have to learn about self-worth based in something else—like an amazing career, child-bearing, a PhD, or volunteering for countless hours. The day would come when I’d have to earn my space on this planet for reasons other than being print-ad material. What I didn’t know was how and when I would be shown. And, apparently I was way off about what I was going to learn. I didn’t learn that self-worth and meaning was found in a three-piece suit career at an accounting firm with problem acne and a child at home. I didn’t learn that hours of volunteer work earned me a girl-scout badge that said something other than “fuckable.” My “lesson” wasn’t in the form I expected—I mean, is it ever? What I learned is that I don’t have to do or be a damn thing to earn my space here. That I don’t need any badges AT ALL. And just so the Universe could make it interesting and have a laugh, my  lesson started on a photoshoot—a photoshoot where I was trying to prove both my looks and my coolness.

I contacted the photographer from Franklin Village; I knew exactly what I wanted to add to my portfolio: “woodsy elegance.” I wanted to capture my “nature”— both glamorous and adventurous— my simultaneous love affair with the dirt of the mountains that welcomed worn-in hiking boots AND the concrete city streets that welcomed high heels and dresses made of silk and tulle. Capturing my “essence” (not my essence at all—those are just bullshit definitions I attached myself to) meant going to the woods and rolling around in piles of leaves in a short dress. See where I might be going with this?

It was November 17th 2013, four days before my 26th birthday, and a miserable day–I was betraying myself just to get some free photos, willing myself to sit through the discomfort of being objectified on this photo shoot. I don’t want to give the reader the wrong idea. The photographer had good intentions, and he did not physically harm me in any way, but I was extremely uncomfortable with our exchange that day, and I never spoke up about it. I felt dirty and just wanted to get the whole thing over with before dark. I rolled around in leaves, sat in piles of mud, climbed around on trees, and lied on all sorts of precarious terrain to get the shots I wanted all while he said things like, “lick you lips, hot hot hot.” In one milli- second of those two hours, I got bit by a tick—the mother load of ticks. The tick that , ironically,  stripped me of the attachment to my “worn in hiking boots” and the attachment to my “city strut” AND the tick that gave my voice its platform to stand on. I would never stay on a photoshoot that made me that uncomfortable today. NO WAY.  Not to mention the LOL that I paid a high fucking price for those free set of photos—literally like 40,000 dollars of medical bills, I’m not even trying to be figurative.

When those bumpy, itchy, unattractive rashes broke out on my body, leaving me uncomfortable being scantily clad for the first time in my life, I was immediately thrown for a loop—what does one do with physical insecurities? And that was just week two of an *almost* three year long journey. I panicked at the sight of those rashes, frightened that I had psoriasis—god forbid. I was so vain and so scared of losing my “looks” that when the doctor told me I had Lyme disease, I was like, “oh cool, well, at least that won’t SHOW. Sure, it *could potentially* affect my heart and brain and nerves, but, like, you won’t see it. It’s not psoriasis.” Then the antibiotics gave me a really bad yeast infection—next-level yeast, people. So, I didn’t feel my sexiest, and I had a new scar where they biopsied one of my rashes, but whatever. I still recognized myself—or the self I had come to identify with that wasn’t really myself at all—the self that lived riding the coat tails of my looks.

About nine months and 1,000 pills later, something confusing was happening. My energy, vibrance and vitality were shutting down, like one room going dark at a time until the whole house was pitch black and haunting.  I didn’t know how to move through such unknown territory. I didn’t know how to find the door out, and I had lost my most dependable resource: my beauty.

My back slowly grew more and more hunched until I was horizontal, laid out by life. My hair started thinning and stopped growing, my eyes got dark, I dropped to below 100 pounds, my cheeks lost their pink youthful essence and, at one point, went yellow And then, one day, I needed a wheelchair (or piggy back rides) if I was going to be walking for any extended time. The mirror, something that had been almost like a friend to me all of my life (maybe even my best friend), became my enemy. What I saw looking back at me disturbed me. My reflection, once upon a time, offered me an endorsement, and it was suddenly the catalyst for deep self-loathing and fear. I could not stomach taking a selfie— I feared the camera. For the first time in my life, I didn’t want my picture taken, I feared being tagged in photos on Facebook, and I feared walking into rooms of people without my sexual, flirty, fun, and hot armor. I felt like a lightless, somber ghost of myself. I could no longer confidently strut around. I sheepishly hung my head, feeling invisible or worse—like an unwanted burden. Men stopped noticing me, girls stopped looking up to me, and I stopped noticing myself. My flirty, fun, pretty self was like a costume I zippered up tightly every day—it literally held me together, and without it, I was truly naked, vulnerable, and terrified. GUTS were spilling out. And so I did all there was to do if I was going to get well (and I would do anything to get well): I learned to love myself naked, vulnerable and terrified—I learned to love my guts. I learned that I am worthy just because I am. I didn’t have to do or be anything other than human to take up space and receive love.

One day, after two years of self-love affirmations and deep inner-healing, I was walking past my bathroom mirror and I saw something—something I had never seen before. What was meant to be a quick glance at myself  before I turned the light off instead gave me great pause. I stopped abruptly, turning to face the mirror to investigate what I was seeing. It was so new. So different. I didn’t see my face, my eyes, my hair, my weight, my skin, or anything external. I saw something so beyond the shell that I am, I saw into the vastness, the boundless spirit that is my true self, and she was so mother fucking beautiful that I had to just stand there crying and appreciating her for a few more moments. Without thinking,  I put my hand on my heart—my fierce human heart— and said out loud,”I appreciate you.” And I meant it. I felt like I was taking my first fresh breath of air in my whole life—like I had legitimately never taken an unpolluted breath or seen myself so pure. Not to be dramatic or anything, but I was basically reborn. And then that moment passed. . .probably as soon as I went on Facebook and compared myself to someone else.

It ebbs and flows, there still are days when I can’t believe how weathered I look. But, far more often, I feel like a warrior princess queen. The letting go and the surrender to being human—uncool and unpretty—sucked,  but do you know what happens after you shed the old skin? You grow brand new skin! AND you have a say in what it looks like this time around. You get to choose what baggage to keep and what to let go of, you get to choose precisely who you want to be. My skin is radiant. People are commenting on how vibrant I look, how pink my cheeks are, how clear my eyes are, and how it’s nice that I have a little more weight on me. But that’s not the payoff. Well yes it is, it’s certainly part of the payoff that I’m looking good and feeling mostly good again —I wouldn’t do all of this hard work if getting well and FEELING vibrant wasn’t part of the deal. The *other* miracle, for me, is that I don’t need your validation. The payoff is that I see way beyond the boundaries of my shell and into the vastness, the MAGIC that I truly am. I have yet to find any wardrobe or girl-scout badge more sparkly or more interesting than human. 

With fun, and love,

Jackie

 

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The Power of Whispering “Please”

 

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I was in a yoga class last Tuesday afternoon, August 30th, 2016. I had spent an hour “opening up” (insert: eye roll), breathing, and getting in touch with the silence and stillness of my body, feeling so grateful for how far I’ve come on my way to wellness. After savasana, I felt all calm and centered, all like “mmm namaste.” Slowly packing up my mat and water bottle, I swiped my phone out of airplane mode simultaneously driving my energy to erratic and off-center. A message from my cousin immediately popped up that read, “I’m sure you’ve heard the news. Will you be at the funeral?” PANIC. I hadn’t heard the news. I was about to hear the news. My 23-year-old cousin passed away tragically in the earliest hours of Tuesday morning. “Passed away” suggests some sort of peaceful movement into another realm, but, I can assure you, nothing about it felt peaceful. Not to me. For me, it was more of a disorienting impact, like when those cartoon characters see stars after getting hit really hard. I couldn’t breathe. The same room I had just gotten all namaste in, held space for my hysterical tears. I immediately thought of his mother—notably one of my favorite people on this planet— and his brother. My heart aches deeply for them. I made a fierce and confident decision in that moment, on my knees in tears, that no matter what, I would be at the funeral. Yes, I knew it was across the country, I knew my health wasn’t super stable, and I knew that I was super short on cash, but I also knew that I WOULD be there. My (almost) three-year long struggle with Lyme disease has taught me a thing or two or three or four about compassion, about humanity, and about empathy. Well “you” taught me, actually. You know who you are—all of the people who have had my back again and again and again over the last couple of years—you’re the reason I know how necessary it is to show up. After I pulled myself together from the shock of the news—out of the hysterics, floating into more a cloudy daze of confusion—I got in my car and drove home to look up airline tickets. Apparently, I had spoken too soon and too confidently. The cheapest ticket was $930.00, and painfully out of my price range. And yet, I went, and I went fully available to my family. How in the fuck, you ask? Because just when I thought I had been shown my fair share of love in this lifetime, I was proven wrong, love saved the day. . . again. As it turns out, there might not be a shortage on that shit.

I’ve always been way more comfortable in the role of care-taker. I truly believed that I didn’t need— “you” clearly needed love and support and help, but, me? I’d be just fine. I’m tough enough, I can take it, I thought. As a kid, I would watch my brother or mother suffer under my father’s cruelty and wish/pray that I could just trade places with them, thinking that I had some sort of magical armor that they didn’t. I played that role for a good long while— giving, giving, giving until I used up all of my energy, got Lyme disease and had nothing left to give. OK, I had to stop giving, but I certainly wasn’t going to ask for anything. GASP. How could I? I would just take care of myself, like I always had.

I continued working as a waitress (I don’t suggest this) to desperately try to pay bills. I refused almost every offer of accompaniment to the doctor, assuming I would just need a couple of months and lots of antibiotics to get back to my “normal life.” Without my asking, a couple of friends jumped in over this short period— my dear friend ran a $1,500 fundraiser so I could cover some antibiotics, another friend took me to one doctor’s appointment, my mom paid for a months worth of an intramuscular antibiotic, and my boyfriend held me while I cried a few times. I thought, at that point, that I had used up my predetermined supply of love, help, and support one gets in this lifetime; as though, upon entering the world, we are handed an allotted number of chips or tickets, and each time we are loved, we hand one in, making us want to “save them for a rainy day.”

My storm came. I took a nose dive into the unfathomable darkness of Lyme disease and multi systemic chronic illness. If I was going to get well or survive, I was going to NEED help—next-level help. I certainly didn’t know how to ask or what to even ask for. It seemed like I needed too much—like I’d probably die waiting for my needs to be met. Finding myself in fetal position, terrified and disturbed, I whispered out into the universe, “please.” Just. . . please. Looking back, it seems like all I had to do—once I surrendered to reality— was sit back and ACCEPT what people were offering me. Here is just a glimpse into what people have done for me over the last two years:

You fed me : One friend flew across the country just to cook me batches of healthy food. My freezer was full of cauliflower soup, lentil stew, lamb burgers, tzatziki sauce, and carrot ginger dressing. Another friend delivers me groceries or home-made meals during every single IVIG treatment. I’ve been treated to countless lunches, dinners, green juices, and smoothies. I have been sent gift cards to Whole Foods or Gelsons just…randomly. I’ve opened my front door to surprise packages from friends and family chock full of nutritious sustenance—from meat, to protein bars, to nuts and tea. hehe. My boyfriend has spoon-fed me / force-fed me more times than I can count, and my family—oh, my lovely family that knows nothing about the insane diet I’m on worked their asses off last time I saw them to meet my dietary restrictions. THANK YOU.

You tucked me in: I kid you not, I have been rocked to sleep. My back has seen many loving hands, and my forehead has been calmly caressed by countless. I have been sung to, massaged, and even CHANGED into pajamas. YUP. Those were the days…when I’d be so sick I couldn’t take my own pants off. More than one person has changed me into comfortable clothing. More than one person has seen to it that I fell asleep. More than one person offered their bed or couch or arms when I needed comfort. THANK YOU.

You STILL take me to the doctor: In extreme ways and not so extreme ways, I have been taken to the doctor. One woman who suffers her own struggle with Lyme disease, took me to get blood drawn before she ever even met me a couple of years ago. Other friends held my hand for blood draws or took me to the doctor when I simply COULD NOT do it alone anymore. And then there were three special people who did long-term treatments with me. One friend took me to Florida and did a week-long doctor visit with me. He wheeled me around in a wheel chair so I could be a tourist in between doctor appointments and bedtime. Another friend traveled to Indonesia with me for two months, reading me books, singing to me, and cooking for me while all of my blood got removed, restored, and returned. My boyfriend met us during that treatment and has sat through days and day and days of IVIG treatment with me and doctor’s visits and ER visits with me, entertaining me with things like, “Heads up.”  THANK YOU.

You paid my way: We raised over $18,000 to help cure me. I think about 300 people donated to my health. 300 people! Each one of those souls played a part in my recovery. Some people donated 1,000 dollars and other donated 5.00 and every penny cracked me open a little more, showing me just how abundant love is. I needed every cent that came my way, and I still do. A sweet friend of mine just purchased me a very expensive air purifier that I couldn’t afford, my aunt and uncle got me a much-needed new pair of shoes, and my mama buys me supplements. I wouldn’t have had a chance in hell without your help. A certain “you” gifted me a laptop. UH, THANKS. And a certain “you” gifted me crazy expensive supplements, coffee enema supplies, meals, and striaght-up cash. THANK YOU.

You LOVE me: You have listened to me, you have let me cry on your shoulder, you have had endless compassion and kindness for me. You have talked to me for hours, given me advice, loaned me special weird healing things, cried with me, cried for me, sent loving texts, made me laugh, came to visit, taken me for walks, called to check in, skyped with me, and cheered me the fuck on. THANK YOU.

That’s just grazing the surface of the last two years. Here’s what happened in one day:

Last Tuesday, August 30th, 2016, I sat talking to two of my favorite humans about my cousin’s passing, “I don’t know what to do,” I said, “I want to be with my family, but I don’t know how to get there. I can’t afford it. It hurts to be so far away.” And one of those women, a woman who knows too much about death, said, “do you want me to put it on my credit card?” Just as I was saying “no. . . that’s too much..” my other friend casually said, “Why don’t I see if I have miles.” I’m still not super good at accepting help. I STILL think I’ve used up my fair-share so instead of saying, “oh that’d be great, thank you,” I was more like, “well. I mean. If you’d be willing and..” awkward weird space-filling chatter and shifting and nail-biting. While I got weird, she found a flight and booked it. When I said, “you’re an incredible human,” she said, “nah, just a human. You’ll do it for someone else one day.” Two people were willing to get me to my cousin’s funeral. And two other people helped me pack/decide what to wear, AND another person drove me to the airport at 4:30 in the morning the next day. I swear all I did was whisper please.

I landed in South Carolina on Thursday afternoon, walking into the heartbreak. I’m wordless. I just love them so much, and I don’t know what else to say about it.  I watched person after person flood the home of his mother with food, flowers, and hugs. I watched her struggle to accept all of the kindness. I watched people step up and pay for expensive and necessary things because death is not only so heartbreaking for the loved ones, but it is also bank-breaking. Grief is not a weekend deal. It goes on for a long, long time and so should support.

Before I left, I told my his mother, “keep accepting the help. Everyone wants to help you. Let them.” She looked at me and said, “But I’ve already gotten so much help over the last year.” She has been in the throes of her own serious health struggle this year. “There’s no point at which you’ve used up help, support and love. There’s always more,” I said. And I KNOW that to be true because of what “you” have shown me.

For some reason, I still slip back into thinking that I’ve used up my chips. I landed back in LA around 1 am on Sunday night and, get this,  two different friends offered to pick me up from the airport. At 1 am! Just when I thought I’ve had enough, my phone rings, a text comes through, a note comes in the mail, someone donates to my fundraiser, or I get a much needed hug.

I love you, my friends and family. I only hope I can give back an iota of what’s been given to me. Thank you, Lyme disease, for giving me an opportunity to learn about love so that I can show up during this trying time. And *please*, if you read this and know my family, show up for them right now and in the months to come. It takes a freakin village and every single person counts, every single hand, counts. And, I beg of you (I’m not whispering now) if YOU are the person who needs help, ask for it. Ask anyone.Because shame is deadly.

Here is my cousin’s memorial fund.

love upon love upon love,

Jackie

 

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It’s My F#$%^ Party Now, and I’ll Cry if I Want To.

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I walked into a healing space this past Sunday morning, a space where people go to feel their feelings, get quiet, and be all lovey-dovey. I took a seat— I totally do the lovey-dovey shit. Immediately bored/ over caffeinated, I started surveying my surroundings. To my right, there was a big childlike sign, a huge white scroll taking up the better part of the wall. Even though the all-caps font was uninteresting, the hot pink lettering was a zing, calling my attention to the words, “DON’T WORRY.” I smirked, yeah, worry is a useless emotion. I swiveled to my left and got instinctively and irrationally angry when I saw a nearly identical scroll taking up the back wall that said (in the same boring all-caps font), “BE HAPPY.” AH, of course, that saying, “don’t worry. be happy.” I don’t like that saying. I’m not a monster—I like the song because c’mon the dude makes magical music with his mouth, but I have a problem when the lyric stands on its own as a pressuring and trivial blanket statement. There is no light without the dark. Sometimes, it IS sad, and sometimes we cry. The broad statement, “be happy” makes me want to throw a protest. I get all defensive and “activisty:” WHY? Why is it shameful to be unhappy sometimes? Isn’t sadness a part of life, and something we have to move through? Isn’t unhappiness often revealing something to us—that it’s time for a change, maybe. Why is it shameful to cry? Why is it especially embarrassing to cry in public? Should tears be stored and saved for only special occasions? What’s the special occasion? The psych ward? Rehab? Jail? A funeral? Because from what I’ve witnessed in my short life, those are the places you go when you just keep stuffing your cells with garbage. How many times have you been told, “don’t cry?” How many times have you watched another panic at the sight of your tears and say something like, “no more crying now, only smiles.”  Or, if you had a childhood like mine, then you know what it is to get in trouble every time you cried–to have to hide your tears— your unhappiness, your honest concerns for what’s happening—and build up an armor of “numb” to protect yourself from a heated attack.

OK, fine, so maybe my reaction to phrases like, “don’t worry, be happy,” have SOMETHING to do with my past. . .but hear me out.

My home was a battleground, and my bedroom was my trench. There were land mines, step on one and experience an explosion. No matter how much memorizing I did, no matter how limber, acute, and dexterous I learned to be, there was always a new land mine. I never quite had the system figured out, and I TRIED—in an act of fierce self-preservation, I tried. Smart-enough, pretty-enough, quiet-enough, kind-enough, polite-enough, good-enough are assets that will always lay just outside an irrational alcoholic’s peripheral vision—they do not see “enough.” And, as a child, I didn’t know that it  wasn’t personal, and there was nothing I could have done/been to make it better. There is NO hidden map to avoid the land mines in an alcoholic home—you will continue to step on ones, they will shock you, it will hurt, and then, if you’re like me, you will go to your trench and cry. Because crying wasn’t allowed anywhere else.

My father came home out-of-the-blue one day in 1995. My dad wasn’t expected at home much, and he certainly was never expected before dark. . .on a weekday. His absence was delightful. I was six or seven, and my brother was/is/has always been 16 months older than me. We sat on our dirty, old, orange carpet in the living room, playing, while my grandfather watched over us admiringly. My grandfather, a man who might resemble the minds-eye of a jolly candy shop owner—his toothless smile lit up a room and the warmth that came from his slightly overweight body was as comforting as the duvet cover when you’re exhausted. In his endlessly loving eyes, we were perfect without having to do a damn thing to prove it, our existence was enough for him. He was on after school child-duty while my mother worked as a receptionist in a doctor’s office, a job she needed to take because my father’s Wall Street checks didn’t quite make it home. I remember hearing my dad’s car that day. My heart skipped a beat, his stomping darkness preceded his entrance. I had learned in my seven years of existence how to take the temperature of a room and be hyper/painfully aware of my surroundings. I mean, land mines will do that to you. I could tell without him entering what kind of mood he was in. Energy shifted, I held my breath, and he finally stormed in— his dark hair disheveled, like black paint splattered on his head as his long- legged strut whooshed by us accompanied by a volatile smirk and “hello.” “Hello,” I said, thinking, “speak loud enough so he can hear you but not too loud.” My smile was gone. I kept my voice down, holding my breath, and I waited like a soldier at war, standing-by to see what the enemy might do first; hoping that he would eat something and leave again or eat something and go to bed, or eat something and die— anything but stick around. Instead he shouted for us, and like his little soldiers, we went running, “coming, dad.”

There were some crumbs on the kitchen floor. Come to think of it, they were quite possibly left by my grandfather. He did ALWAYS have a habit of leaving a mote of crumbs around his chair—he was a pastry-lover and eventual diabetic. Regardless of whose fault it was, there were just a few crumbs— something that’s fairly normal in a house with two working parents, two young children, and, that day, a 75-year-old pastry-eating man who couldn’t bend down. My dad’s reaction, I know now, had nothing to do with the crumbs. He probably needed a good cry, he probably needed a hug. My brother and I stood, shoulder to shoulder, as he shouted at us, harassing us and name-calling, “you’re a couple of pigs,” “you’re fucking disgusting, now get down on your knees and pick up every last crumb.” When we got to our knees, on opposite sides of my dad’s legs under the kitchen table, he grabbed us by the backs of our necks, as you would grab a dog, and shoved us into the ground again and again, as you would do to a to a dog who peed in the house, “there are no fucking crumbs allowed in this house.” (That house was super unpleasant and needed a remodel in like 1950. . .crumbs were not the issue). My face was burning and I had that knot in my throat, the thing that happens right before you burst into tears. That knot was my warning signal…HOLD IT IN, SWALLOW, I was shouting in my head, DO NOT CRY, Do not let him see you cry. If he saw me cry, it would be like setting off another land mine. He HATED when I cried and, quite frankly, saw no justified reason for me to EVER shed a tear or be angry or overwhelmingly happy or have really any feelings, for that matter.

We were sent to our bedrooms for the remainder of the night. I wanted to spend more time with my grandfather, but we were told not to say goodbye to him, not to speak, just to go to our rooms. So as we marched sheepishly away, I covertly glanced at my grandfather on my way up the stairs, my eyes begging him to come save me. He looked devastated and helpless. I got to my room, shut the door, sat on my bed and quietly wailed, holding myself while I shivered. I’d always get so sweaty in the midst of attack, and by the time I had my freedom to release, I’d be drenched and cold. I loved my bedroom. I felt safe crying in my 30 square foot dust-box as long as my dad stayed downstairs. That is the most common example I have of my process. I hurt all of the time, and I held my breath until I found solace in my room. My room was a haven— a place to live in fantasy, to cry, and, later, in a natural progression under the circumstances, to do drugs.

My family fell apart and dispersed. I sobered up and became really passionate about my emotional freedom and my growth as an individual. I didn’t want to save my sorrow for my bedroom or even for my house. I didn’t want to “behave,” or “be quiet,” or be the kind of person who said, “stop being over dramatic—pull yourself up by your boot straps.” I wanted to HEAL. I’m all in for this journey—mine and yours—the anger, the grief, the joy, the laughter, the sadness, the mother fucking TEARS. I watch people behave like assholes all day, every day— I live in LA. Customers snap at their baristas or make some sideways comment about the long line they’re standing on or shut doors in your face, or shout unrepeatable things at other cars on the road, but CRYING in public is a fucking taboo. Give me a break. Crying is a necessary part of healing and growing. It doesn’t need to be saved for your shrink’s office. If you need to cry now, cry now. If you’re sad and need a hug, say so. It’s better than going home and taking it out on your family in some ass backwards way. Trust me.

Healing is not easy or fun, but I have solid role-models to show me what ignoring trauma looks like and that looks a lot less fun.My brother is, unfortunately, a prime example. He’s not so into feeling shit. I swallowed years of nasty, condescending language from him. When we were sent upstairs as kids, I would try to team-up with him, feel it with him, and he would shoo me away with a pained and angry stare, “go away.” He never did any crying with me, he never even told me how it made him feel. He called me a “drama queen,” “annoying,” “a pain in the ass,” “a liar.” He stuffed it all, had sudden outbursts of rage, and found a way to numb further. . .on repeat. If you take a look at both of our lives today, I may be the one with Lyme disease, but I am the more healed. No bacteria in my body could ever be a match for the poison that has built up in him over the last 30 years. I am, somehow, with all of the medical shit I have going on, the healthier one. . .sadly, without getting into the dark details, it’s not even a close call.

Twenty  years of poison- build- up ahead of my brother is my old man’s example.  Not knowing how to handle his own childhood trauma, his own emotions, initially made him a highly unpleasant human, but as time went by, he became a dangerous human. So, when he mounted our suburban front stoop at noon in 2005—a stoop that was supposed to be my entrance to home but instead was my landing pad for a war zone—in a pair of gray boxers, 20 pounds too skinny, and began chasing me and my bloody mother around and cursing at us while all of the neighbors watched, I had to wonder, “what the fuck was SO UNACCEPTABLE about the tears I cried in public? Or about those crumbs under the table?”

Feel your feelings, save the world.

With fun, love, and tasty, salty tears,

J. Shea.

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Treasure-Hunting? You Have the Map

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If you’re here looking for a quick-fix solution to Lyme disease, I will disappoint you. If you’re here because you’re googling in a desperate search for the way to “get better asap,” I will—sadly—disappoint you. I am a person that has a great deal of recovery from this disease and more to come, but the most important thing I have learned over my two- and- a half-year long struggle with Chronic Lyme disease is that there is no one solution, no one way, no magic trick. What works for my body, likely won’t work for your body and what works for your body would probably need to be modified for mine. Antibiotics do not work for everyone. Nor does The Cowden Protocol, the Buhner protocol, Ozone therapy, infrared saunas, eating raw, high doses of vitamin C, coffee enemas, IVIG, stem cells, reiki, and the list goes on. For most people(including myself), it’s a combination of many things, leaving an uncertainty around what ACTUALLY “did the trick.” But look at that list: yes, it’s scary and confusing that there’s no one remedy, no steadfast solution, but it is also a list that presents bountiful opportunities to heal; there are no real barricades, there’s always a new road to explore. Healing flaunts an abundant landscape. On this site, I can only write about my experience, the paths I went down, which paths led to an opening and a rainbow and which ones led to a moldy cave summoning death. I can only hope that one of the paths I suggest happens to help you. It was frightening when antibiotics — the most commonly known treatment for Lyme — didn’t work for me. It was frightening to look at all of the forks in the road and know that nobody, not a single person, had the exact directions that would lead me out of the woods. That my guidance needed to come completely from within was startling…lonely, but every time I relied on someone else’s map, it didn’t take me where I hoped it would go. It felt so hauntingly desolate to be that much of an individual— I felt I had already done enough work in this area, and I really wasn’t up for the task of a deeper relationship with my internal guidance system (fuck that), but it seemed like I didn’t have a choice. If I wanted to heal I was going to need to become my own greatest ally, advocate, and traveling companion. And I wanted/want to heal.

As a result of how I was raised, I didn’t trust myself for most of my life. My personal instinct and self-trust— something that we are all born with— were stolen from me and replaced with extreme self-doubt. My notably powerful inner-voice was quieted by my father’s outer-voice, force-feeding me the idea that I was wrong… always.  That foundation left me endlessly seeking counsel on what I “should” do, the opinions around me seemed to hold more weight than my own. And then in my early twenties, I was faced with a big decision that no one could make for me, and I was forced to begin the scary descent into self.

I moved to Hawaii from NYC when I was 23, both for a boyfriend that made me feel safe, and because I didn’t want to do the NYC grind anymore. Deciding that I wouldn’t let an acting career control my happiness (I didn’t want to live in NY or LA or London), I moved, thinking, “if I love to act that much then I can act from anywhere.” And I did just that. I landed on Maui and within a couple of months was on stage and signing with an agent on O’ahu. There was one tiny little problem—I HATED it. I was a big fish on dry land. I loved the work I was doing, and I loved a lot of the people (some very talented) I was working with, but, in the end, there was a total disconnect: I did not belong. I didn’t want to talk about the surf, I wanted to talk about George Bernard Shaw, and I didn’t want to look at one more fucking painting of coral, I wanted the MOMA. And I didn’t want to be the best, I wanted to be INSPIRED and challenged by the best. But leaving Hawaii meant leaving my long-term relationship with my sweet boyfriend, it meant leaving a picturesque mountain home essentially on a goat farm. It meant leaving my very  comfortable life that COULD likely satisfy me on some level for a good time to come. I wanted to leave, but what if leaving all of that was a terrible decision? I struggled for over a year. YES, OVER A YEAR. Should I stay or should I go?  Or maybe I should move to O’ahu ? ON REPEAT, for a year, to anyone who would listen. I wished more than anything that someone could just tell me what to do, what the right thing was, or give me the instruction manual on how to live a fulfilling life. I attended Unity Church one Sunday, a non denominational experience of— I don’t know— spirituality, in a desperate attempt at peace. After the service, an announcement was made that there were prayer chaplains, people who pray with you, and I jumped up to be first in line— I was THAT desperate. I was seated opposite a mild-tempered man dressed in pale linens—his demeanor matched the luxurious breeze and lush scenery on the outdoor balcony. I was the thing that didn’t belong, dressed in black, a tea kettle about to scream. He looked at me and said, “what do you need today?” The blue sky and the green grass darkened, the breeze went stale as I shifted out of the present and into the fear of the future, and I burst into tears, “I don’t know…GUIDANCE. I need guidance, desperately.” I closed my eyes to deepen my breath, he gently and lovingly— like he was an old friend— took my hands and… said a bunch of spiritual stuff that I don’t remember. I opened my eyes, now bored and still without an answer, and that’s when he said one last thing, “may you always know that the guidance is inside of you and nowhere else.” DING DING DING. I did know. That deep-knowing that I had been trying to repress for so long came storming through the surface, like a breeching humpback whale, and bellowed, “please leave. You need to go, you need to leave your guy, and you need to go to LA.” Motherfucker. My heart wants the most complicated shit. Plenty of people would have wanted to stay, plenty of people would be happy and thrive doing exactly what I was doing, but I am not plenty of people, and I cannot steal your desires. I cannot rob you of your internal guidance system because I can’t locate my own.

I went— I went terrified, in tears, and with almost no money, but I went, and I claimed for months that it was the hardest decision I had ever made. I don’t know why—I had already chosen to quit drinking, quit doing drugs, move multiple times, cut off my father, welcome him back in, leave multiple relationships, quit college, continue my education as an actor, quit jobs, take jobs, turn down jobs, etc—but something about leaving that relationship and that goat farm on Maui for LA life truly felt like the hardest decision. I turned 25 in Los Angeles a few months later, and I was high on my new life. I had made the right choice, I was thriving.  And then, suddenly, my worst nightmares started to manifest. I went overboard, and the only thing that threw me a life-raft when I was a hot- second away from drowning was my internal voice.

I was profoundly tested in the waves of a destructive romance and a new decision needed to be made that would deeply affect the rest of my life—would I deny myself and submit to his storm in an act of feebleness or trust that the life-raft would lead me safely to shore?  My inner voice was wild and loud. I knew from the moment I met him that he and I would clash so profoundly it could be deadly, and I repressed myself again, manipulating my truth to get what I intellectually wanted—self-betrayal is almost a betrayal of the Universe and, in my experience, it has always led me to the depths of despair. Again, what was my near-death experience is probably someone else’s fantasy life. Someone else could have happily been in that situation, but I wasn’t—I wasn’t just unhappy, I was suicidal.  When the act of not listening to my gut was actually going to kill me, I gave in—I left him, I flew to NYC to recover from what was a traumatic experience, and I vowed to trust myself, to listen to my inner voice from there on out. It knew better than my brain did. I would stop denying myself, betraying myself, abandoning myself, and I would pay attention to what my body wanted instead of shutting it up with some damaged part of my brain.

Again, I thought I had learned enough at that point: there would at least be a couple of years  of smooth sailing. NOPE— I got sick just a couple months later. While all of that previous experience gave me a foundation to grow from, trusting my guidance system when it came to how to treat and heal from an illness—when literally EVERYTHING (my life) was at stake and literally NO ONE had the one answer— that is next-level shit. I actually had no idea just HOW MUCH information my body held. Our bodies are very smart.

When the common treatment of long-term antibiotics didn’t work for me, I was faced with the horrifying task of trial and error. I learned/ am learning to submerge myself in patience and self-care. Slowly, the practice of staying in touch with my body, consistently doing what felt “right” to me, going where the love was, and being my own greatest ally has dropped me here—in a much healthier place. We are each dealing with distinctive chemical structures/illnesses/traumas/brains and therefore, we all heal differently. I found out that the guidance system I hold within my little self is a perfectly detailed map to the treasure, inviting me to use it freely whenever I want. I still turn down the offer sometimes because I’d really rather not walk through the Lion’s den that is sometimes life, but it’s there, and it’s the best tool for healing Lyme disease I’ve got. I am sorry if this disappoints you, but that is what I have to share today: find your own way, trust your body, and learn to love the shit out of yourself. Find a few (or a hundred) loving hands to hold on the journey but you lead the way—the benefits are miraculous and empowering.

With fun, love, and an abundance of healing,

Jackie

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The Phlebotomist and My Body: Who’s in Charge Here?

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I was anxiously waiting for my name to be called in yet another poorly-lit waiting room. Doctor’s offices were once just an occasional means to an end: I went feeling shitty and I’d leave with a script from the omniscient doc to feel better. Now, they’re as common as my trips to the grocery store, and they no longer inspire hope but instead hopelessness. Lyme disease has both blessed and cursed me with a deep connection to my body so I KNOW immediately when something feels bad, and these rooms— they feel fucking bad. I waited, growing more anxious, feeling like I was stuck in a cage, wanting to see the sunlight, jealous of all of my friends enjoying the beautiful day. Call my name, call my name. I got up three times to check the sign-in sheet. Twitch, Check my phone, shift positions, take a sip of water, look at the clock, check my phone, try to focus on something else, and repeat. And one hour later, one second before I developed Trichotillomania, my name was called. However, this is always a false sense of relief since all that happens in this time is that I get to stretch my legs while I’m ushered into the next room where I’m asked to wait just a liiitttttlllee while longer. This particular experience was at Quest Diagnostics, a lab for drawing blood, so I felt extra annoyed that what could take five minutes —IF PEOPLE WERE FUCKING INTELLIGENT— was becoming a full-blown interruption to my evening. The woman who was about to draw my blood directed her stink of apathy at the computer screen, never even looking at me. I hated her for it— she wouldn’t even acknowledge me if we were riding an elevator together yet she was about to wrap a giant rubber band around my bicep so that my veins screamed and then jab a sharp object into the one of her choosing. I sat staring at her. FUCK YOU: ACKNOWLEDGE ME. Acknowledge the person whose information you’re staring at: You know my full name, birthday, weight, height, marital status, physical ailments, and my fucking financial bracket based on insurance so LOOK UP AND SAY HI. I was super moody. When she finally turned around, it was to grab my arm, get a vein, and stick me (I get stuck with needles at least three times a month so it’s not like I’m a stranger to the sensation or super uneasy about it anymore). This one hurt, and the fact that I had been holding my breath in anger for almost 2 hours wasn’t helping. It hurt so much more than I had expected, and it didn’t stop hurting. It throbbed. I squealed which provoked her to unsuccessfully attempt pulling the rubber band off which only made the needle shift in my vein so it was jabbing me harder. “Stop pulling the rubber band,” I pleaded. “Oh my, I’ve never had this happen before, I’m sorry,” she kept saying. I didn’t believe her. She pulled the needle out and the crease in my elbow pulsed with no relief until I passed out.

When I finally came back to full(ish) strength, shivering because I had sweat so much, I started to cry. I felt so violated…again. I was flooded with memories of doctors, hands, and needles meddling with my body. I thought of all of the healthcare providers who treated me like a mere inconvenience. I was overwhelmed. After another few minutes of getting back into the present where there is infinite safety I realized, for the umpteenth time, that my body is so smart, and it was teaching me yet another lesson. I hadn’t been on point with my self-care the previous couple of days, and it was like my body needed a reset. I needed a reminder that self-care comes first — I had been pushing myself both physically and emotionally: I didn’t eat enough that day, I had rushed to the doctor’s office, I had packed my schedule too tightly resulting in anxiety, and I wasn’t giving myself space to process Ian being gone, my Mother being here, and IVIG dose number four starting the very next day. I was being hard on myself about finances and beating myself up for all sorts of things. I had gotten out of my habit of ninja-level self-care, unfairly leaving the weight of my needs on my phlebotomist which resulted in a loss of consciousness. Interesting.

It was a much easier time when I trusted “the doctor.” I was taught to always trust medical professionals. “The doctor” always knew better: “what did the doctor say? did you go to the doctor? The doctor said you need to take this. The doctor said you were fine. The doctor said it’s just anxiety. The blood work came back fine so let it go..” I LOVED the virginal world of trusting people with any sort of medical degree. In 2013, I walked in to see my first lyme literate ND who happens to also be famous for her experience and research in the world of Lyme. I immediately undressed so she could see all of my rashes and, after 30 minutes of face-and ass-time, I left with prescriptions for three different antibiotics. She didn’t order any blood tests or get much of a history on me — she was busy and it was fine. I’m impatient anyway; I’ve always been on board for a quick-fix. Hence, I’ve always loved antibiotics. When the first round didn’t work, I gave over my credit card number freely for 15 minute conversations with this ND, and I took her advice for 10 solid months. I took something like 450 oral antibiotics over that time, prescribed by her. In all fairness, she continued to ask me if my body could handle them and I continued to say, “yes, if YOU think it will get me well then I can handle it.” I took crazy expensive herbs prescribed by her and my acupuncturist, never really researching anything. I didn’t want the responsibility of caring for myself, truth be told. Who does? I need so much —can’t “you” just do it? I was like, “charge my credit card, charge it however much you need, as long as you say what I’m buying will work.”  Then, one day, my body fought back and started screaming at me. I had not had that experience yet — the experience of being in -tune with my SELF. Up until then, ten months into illness, I simply dosed myself as much as possible, blindly letting my doctor do what was actually my job: decide what was right for my body. So when I started experiencing a profound weakness every time I went to grab a bottle of antibiotics, I was confused. I would gag at the thought of swallowing another pill, I could actually feel my muscles weaken when I went to open a bottle. I couldn’t deny that my body was telling me something. It was shouting at me to STOP.

In retrospect, that’s when my recovery truly began: November of 2014. I needed a new treatment plan. It was between getting a PICC line and going the all- natural route(something I had NEVER in my life wanted to touch. I was madly pro quick-fix, and nothing about chewing on celery seemed quick to me). I had two friends in my life, both of whom had recovered from Lyme, one with a PICC line and the other all-naturally. But they gave me the same advice, “listen to your body, only you know what is best for your body. No one can tell you what to do, everyone is different.” This is true especially with elusive illnesses like Lyme disease where there truly is NO ONE WAY to getting better. Each body is different, and listening to my own intuition was the best advice I could have received .It was so clear. I knew, for some reason, that the only hope for my recovery was a natural route— healing from the inside-out. I began seeing certain medical professionals that treated me with kindness and care, and I started treating myself,  researching and listening first and foremost to my body through all different kinds of herbs and treatments. I was improving, but I wasn’t getting nearly as well as I wanted to be. Again, I listened to my body and to what was being shown to me by “the Universe,” if you will, and all signs pointed to Ozone therapy with a Doctor, who treated many Lyme patients  with success (now including me!), in Bali, Indonesia. It was in Bali that I first noticed just how much my relationship to my body had changed.

Lying on a long, flat medical table in a dark room finished with medical equipment that reminded me of a mad-scientists basement, I was waiting anxiously to get stuck with my next needle for round two of Ozone. The previous needle had brought me close to fainting, but after my best friend spooned sweet tea into my mouth, I recovered just fine. My doctor, a warm, light-hearted Balinese man in flip-flops, was leaning over me, his shirt falling on my face, gripping my forearm in search of a juicy vein. Squeeze- nothing there. Squeeze harder ..HARDER… a little something but not enough. Then he shifted to my left arm while his nursing assistant kept hold of my right.Get off of me, get off of me. Tears formed, I grew hot, and my body was shaking. I wanted to be treated with delicacy. That was the first time I realized I was traumatized from all of the doctors who grabbed me, touched me, poked me, dismissed me, misdiagnosed me, and mistreated me. My body, the same body I had abandoned and dismissed, the same body I had betrayed (especially when I went to visit the doctor) the 27 years prior, was now like my own child: I had lost my naivety, and I knew that if I didn’t protect my body then NO ONE would. Treating myself with such delicacy and love has been a major factor in recovery. Ever since I started being my own greatest ally, it’s been an uphill journey—albeit slow as fuck because apparently I needed a lesson in patience, but uphill nonetheless.

My doctor in Bali wasn’t doing anything wrong (he needs to find a vein) and my ND, though over-saturated with patients and a bit careless, was doing what I asked of her: more antibiotics! My phlebotomist, that bitch from last week, wasn’t NECESSARILY doing anything wrong either. My doctors aren’t supposed to act like the parents I never had (which I seem to just expect from EVERYONE). In this confusing world of illness, where I am so powerless over so much, including certain provider’s bedside manners, AND competency, I can focus on the one thing i do have power over: self-care. Am I showing myself the kindness and love that I wish the medical world would show me? Am I eating enough, drinking enough, and resting enough? Am I welcoming joy and wellness into my life? Am I keeping my schedule manageable? Am I turning to my friends for help with doctors appointments and blood-draws and IVIG treatments? If I think I’m not getting the right treatment, it is my job to first listen to what my body needs, second to do the research and see how I can get my needs met, then walk into a doctor’s office and advocate hard for myself. A doctor, like everyone else, is ICING ON THE CAKE. First, I need to bake the cake. I AM IN CHARGE HERE.

With Fun, love, and power,

Jackie

PS: for support on your journey with illness, we are here

 

 

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Failing Better: On Imperfection

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May 26th, 2016:

Melissa: I just want to get an A+ at life. I want to be perfect at everything and for everyone.

Me: I’ll give you an A+ when you can accept yourself in the moments where all you’ve got is a D-

Melissa, if she knew me better, could have retorted with the cliche, “you should practice what you preach.” But since she doesn’t, I let her assume that I do imperfect, perfectly. It’s fun to pretend. In reality, just a couple of days earlier, I was shaming myself for my own D-. I was getting my IVIG infusion. I forced myself up to pee, wheeling my IV drip into the bathroom with me, strategically shuffling to avoid tangling the tubing. I sat on the toilet which leaves me with nowhere to look but at my reflection in the mirror. I instinctively wanted to shatter what I saw. Defenseless against my bullying brain and my morphed perception, I saw dark eyes swallowing the blue sparkle I once loved, pale skin dully planted on a bony face, dirty unbrushed hair, eyebrows that needed tweezing, chapped lips, and sun spots. I saw a jaded, and imperfect face convicting me of a broken, worthless life. I started wondering where I went wrong- how did I end up so sick for so long? Then rapid-fire: I’m not drinking enough water, maybe I’m drinking too much water, what if I’m taking the wrong supplements, did I eat the wrong foods, did I take a drug that interfered with another, did I stay on antibiotics too long, should I have stuck out the Cowden protocol, should I have used more money for x instead of y, I don’t meditate enough, exercise enough, I’m not positive enough, maybe I didn’t rest enough, or maybe I rested too much. What is it about the “fucked-upness” of me that is keeping me sick? STOP. I know this voice —it’s been a lifelong enemy of mine that I can’t shake; it’s always finding new ways to attack me. But what a pussy it is—attacking me at my most vulnerable. This voice doesn’t have the same power it once did because after a year of being sick, I raised my white flag and I stuck it right where the enemy dies: in the acceptance of my own humanity.

In 2006, I lived in a Single Room Occupancy at the Y on 92nd Street and Lexington Avenue. It was depressing; the walls were bare, and each corner held a pitiful piece of furniture: a twin bed, a desk, and a dresser. That room reeked of a stale, lifelong loneliness. I tried to stay out as much as possible. I was in school, and I worked long hours as a waitress, saving money to pay my brother back. Apparently, I had been stealing from him. As it turns out, when you use someone’s debit card without asking (“for emergencies only”), you’re actually using their money and that’s considered stealing. Who knew? And what IS the definition of “emergency” anyway? I sat at my desk, counting the money I had saved AGAIN, stuffed it back into its white envelope, and looked at my bulky computer screen. BLANK. I had to write a paper, but I was overcome with a paralyzing embarrassment. I rested my elbow on the desk, my head to my fist, and I heard a sudden burst of laughter outside my door. I blushed from an increasing disgust in myself, and that’s when it hit me. I’m ashamed of my own existence, I thought, I don’t deserve to be alive- even the way I breathe- it’s pathetic. I feel guilty just to be taking up space, breathing in fresh oxygen. I was having a revelation- I knew exactly where that feeling was conceived. I felt the same in that moment as I did in 1996, Seven inches shorter, and about 95% more innocent, I sat in my bedroom alone- enduring my punishment for being a burdensome human who couldn’t do anything right. Thanks, Dad. That’s where I started unconsciously thinking: how could I make myself “perfect” so that I could prove my worth and avoid trouble? I didn’t want to be too needy, too independent, too obnoxious, too quiet, too sparkly, too dull, too smart, too dumb, too sick, too healthy, too happy, too sad, too pretty, or too ugly. I wanted to land right where everyone would HAVE to keep on loving me- right in the sweet spot of super cool but not cool enough to provoke jealousy. Wow. I assumed that the self-awareness in itself would act as a cure. Knowing where my need for perfection came from would surely evaporate the need itself. My self-awareness would be a short-cut around all of the pain. That theory proved to be wrong as I stumbled through the next 8 years, torturing myself- taking little steps forward but continuously seeking a way OUT of this whole human being business.

I started reading the spiritual books, meditating, going to therapy, journaling, doing yoga, and chanting -not to accept myself but to FIX myself. I stayed IN ACTION all of the time, soaking up every opportunity to “better myself” with the ultimate goal of finding a formidable plateau exempt from a vulnerable and fragile life. But life, by definition, is growth. So hanging in some euphoric plateau would actually just be heaven (aka death). I know, it’s super unfortunate. The whole “we’re on Earth to grow” business can be such a BUZZKILL. But why is it so scary to accept ourselves as imperfect? I mean, all magnificent art is built around imperfection. I remember doing a short study with an acting coach here in LA. We were talking about being in the audition room and how all of us actors want to go into the room and do a perfect job. She said, “ No one wants perfect. We watch movies and TV to watch other humans’ flaws and imperfections. It’s your flaws that MAKE YOU INTERESTING TO WATCH. You’d never watch a movie, read a book, or listen to a song about someone who is ‘perfect.’ What a snooze.” That inspired me- what if I could just let myself be, accept myself, and stop obsessing over every little mistake I made?

After all of that work I did to avoid my own humanity, I got sick. (I feel like this is the correct time to say, “isn’t it ironic,” but I’d hate for a bunch of controlling assholes to attack me with, “that isn’t what ironic means” after I write a whole essay on imperfection. OH, that would be ironic too, wouldn’t it?). Illness: the thing you think will never happen to you until it fucking does. I remember thinking that I wouldn’t fall prey to Lyme Disease like all the other weak people did; I’d be better in two months, at most. As time “ticked” by (see what I did there?), and I wasn’t getting better but getting sicker, I turned back to my favored tool: shame. And I used it to beat the shit out of myself. I blamed myself for the illness. I must be manifesting it, I thought, I’m weak, what’s wrong with me? I tormented myself for months, maybe even a year. When my beat-downs were getting so powerful that they became life or death, I started to aggressively seek a new way. That’s when I came to the conclusion that I had wasted my life trying to outsmart my humanity. I was on a scavenger hunt for something that never even existed. Talk about a buzzkill. I didn’t need to be healthy to be worthy. I didn’t need to look pretty or be sparkly or always have my wits about me. It has been through my battle with illness that I accepted myself as a flawed human…sometimes.

I didn’t LEARN; I’m learnING. The desire to outsmart my humanity still creeps in on me in unarmed moments—like last week during my IVIG, and even this afternoon when someone mentioned that I looked tired, and I heard, “you look pitiful and weak. You’re an embarrassing disgrace.” Why do we always get so offended when someone suggests we look tired? Why is it such an insult to be human? Today, I’m capable of recognizing those thoughts as unproductive, calling a loving friend, and forgiving myself for whatever mistakes I may have made. I’m capable of allowing myself to be tired— to love myself anyway. But sometimes I spiral into the darkness, anyway. I’m failing…better.

When I was like 19, I was having one of many heart- pounding tantrums about a boy. I stood in a circle of girls on a street corner in NYC puffing down cigarettes. I was in the quick sand of obsessiveness, talking in hysterics about whether or not he liked me, when he would call, or how to make him love me again- who knows – all of those big deals were such a blur once the next boy showed up. I looked at my 3 girlfriends around me, embarrassed, feeling like I couldn’t escape my own insanity, and said, “I know- I need to get over this.Oh God, I’m being so annoying.. who would ever want to be friends with me like this.” One of my friends smiled and said, “What? No, Jackie, I love you. And I don’t love you in spite of your ‘crazy’ I love you for it.”
I had never heard such an idea expressed. I try, and sometimes fail, to love myself and you for our collective crazy- our humanity. And when I fall short, I remember what Samuel Beckett said, “Try. Try Again. Fail. Fail better.”

 

With Fun and Love,

Jackie

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