Lyme disease

Lyme disease is an epidemic affecting 300,000 Americans each year. It is unrecognized by most, and immensely misrepresented by many doctors and the CDC, making it an arduous recovery process. But recovery is possible, and you are not alone.  Read my story, struggles, and eventual triumph over Lyme disease.

Being Unproductive is Underrated

“Kryptonite” by Three Doors Down was playing as a crowd pleaser in-between sets at a Maui music venue. It was 2011—too many years since Kryptonite had been popular. But that’s typical of time-lagging-feet-dragging island life. I rolled my eyes because I was an artsy snob from New York City,  but secretly I loved the song. […]

Posted in anxiety, Lyme disease | Tagged , , , , , , , | Leave a comment

Bill Nye Saves the World?

That is a mighty declaration Bill Nye makes in his new Netflix show’s title, isn’t it? Especially since his “entertaining” op-ed-esque message in episode two on alternative medicine is mostly destructive. Normally, I wouldn’t be interested in watching anyone try to debunk alternative medical treatments because it is just a way for me to get […]

Posted in chronic illness, Lyme disease | Tagged , , , | Leave a comment

On Mucus, Urine, and Peace

  Mucus: I’m home sick—”normal” sick. I have plump yellow and green stuff building up, breaking up, and making its way out. The “normal- sick” sensation remains one to rejoice over. I didn’t experience this for a couple of years—something about Lyme making it impossible for my immune system to work enough to fight common […]

Posted in Love, Lyme disease, spoonie, Uncategorized | Tagged , , , , , , , | 2 Comments

While we’re on the Topic of Women: What’s up with our Immune Systems?

His teeth moved in his mouth like they weren’t cemented in place—were they dentures or just loose? Was it a twitch he had in his jaw that made his upper teeth push against his lower teeth rocking them forward like that? Was it just his age—will my teeth soften too one day? Jack was in his […]

Posted in chronic illness, Lyme disease | Tagged , , , , , , | 2 Comments

Clean Eating: My “Controversial” Diet

I gave up booze and drugs at the startling age of 17—the age many (or most?) people are just getting started. Jaws still drop when I mention in passing that I, in fact, do not drink and haven’t in over a decade, but the news doesn’t land with the same deafening impact it did in […]

Posted in chronic illness, Lyme disease, Wellness tips | Tagged , , , , , | Leave a comment

This Week

Hello! This week, I opted for a post on Monday due to Tuesday’s election. As a person recovering from Lyme disease, I do not have the luxury of being wildly angry and fired up about yesterday’s events. It’s too exhausting, too taxing and too risky to let myself spiral into the darkness. Instead, I have […]

Posted in Lyme disease, Uncategorized | Leave a comment

The Symptoms, Part One: Depression

I sat submerged in the bath water.  The bathroom was dark and quiet, lit only by one large, flickering candle. My face dripped with sweat from the steaming hot water infused with epsom salts. I was motionless. Only my eyes shifted, taking note of my surroundings— the blue walls, the dancing light, the sparkly new […]

Posted in Love, Lyme disease, Uncategorized, Wellness tips | Tagged , , , , , , | 1 Comment

Health Tip Tuesday: Eat Garlic

Consuming raw garlic works as a natural antibiotic! Amazing, right? It fights fungal infections AND yeast which I found so fascinating and exciting AND curious that one time I stuck a clove of garlic up my vagina ..and that’s how I ended up LOSING a whole clove of garlic up my vagina. Apparently you can […]

Posted in Lyme disease, spoonie, Wellness tips | Tagged , | Leave a comment

My Top 10 Simple and Affordable Wellness Suggestions

This week, I’m in my second of twelve IVIG treatments. Five days in a row, six hours a day, I’m receiving IV Immunoglobulin therapy. It’s really hard on my body. I’m writing to you with an IV in my right hand (I was too out of it to take the practical idiocy of this into […]

Posted in Lyme disease, Wellness tips | Tagged , , , | Leave a comment

In Loving Memory

  My father is not dead- not by medical standards. Not yet. Tick tock- I’ve been waiting for him to die, watching, angrily, as the more innocent go in his place. He’s more..missing with an expectation of no return- I expect he’ll die, lonely, on his lifelong search for the unattainable. I tried. I tried […]

Posted in Addiction, family, Grief, Love, Lyme disease | Tagged , | 5 Comments