My particular IVIG dose goes on for 5 days in a row/ 5 hours a day so these suggestions may not be appropriate if that’s not your treatment plan. This list came about after 4 treatments, a few mistakes, and the experience of a couple very smooth treatments:
1. Stay Hydrated – I drink at least 2 liters of water with lemon and 16 oz of coconut water a day. It prevents severe migraines and extra pain/ nausea. I always make sure to have enough coconut water around so I get electrolytes. If you prefer Gatorade, have at it.
2. Stay ahead of the pain– I take ibuprofen 400 mg before treatment and before bed.It seems to be enough to stay ahead of the headaches and body aches (Tylenol doesn’t work for me). My first 2 rounds of IVIG were more brutal and I had to take extra ibuprofen. It DOES get easier. I’m finished round 4 with minimal headaches
3. Take your prescribed pre meds– I’m prescribed Benadryl pre- drip and I’ve not stopped taking it.
4.Have meals prepared-Hopefully, you have someone taking care of you for the five days of treatment. I try to fill my fridge and cabinets with healthy food the day before and let my care-taker know what I *should* eat. By the time, IVIG starts I want to eat garbage food so it’s important for me to keep up with healthy meals. I’ve experienced both a robust appetite AND no appetite during treatment so I let my caretaker know that I’d like them to force food on me if need be. My body needs the fuel. If you have nausea, try Zofran.
5.Stretch/ walk– Lying on the couch or in bed all day isn’t ideal, but it tends to happen when we’re so tired. My dear friend gave me a stretching routine for before and after treatment. It’s very mellow, but it’s enough to give my body a break from the soft bed. Also, just lying on the floor for a while can do good if you’re too tired to walk/ stretch.
6.Stay calm/breathe– AS ALWAYS, breathe. This is not a time to stress and worry about all of the “to do lists” rolling around in your head. Your body is working really hard. This is a time to rest and welcome healing.
7.Have things to do – 5 hours a day/ 5 days in a row.. inside and immobile can really get to anyone. It gets to me. Try to have plenty to do. I personally like to learn new vocabulary, watch TV, read (if I can), photo shop some photos, etc..
8.Ask for visitors– ASK FOR HELP! It can get lonely, depressing and boring being inside all of that time. Ask your friends/family/feel good people to come hang and don’t hesitate to ask for something from the store if you need it.
9.Massage – If you’re lucky enough to have someone who will massage you for free, then get on it! If not and you can afford someone coming to your house once or twice then get on that! Massage has never felt so good to me.
10.Ice packs/blankets– I seem to be very sensitive to the temperature. Ice packs really help me stay cool and comfortable and relieve my pain. I often fall asleep with them. And blankets obviously do the opposite. I always have both near by. Staying comfortable in mind, body, and spirit is key.
OH, one important extra tip: If you’re having severe side effects, ask your provider to slow the drip down so it goes over a 6 hour period. This can do wonders!!
If you need continued wellness support – we are here.
Fun and love and lots of healing!